There are many organizations focused on research, advocacy, care and support for the Parkinson's community. These include non-profit foundations, medical and research centers, government agencies, regional support groups, and advocacy groups. Each has its own special focus, but all share the common goals of improving the lives of those affected by Parkinson's disease and someday finding a cure.
The Michael J. Fox Foundation for Parkinson's Research (MJFF)
www.michaeljfox.org phone: 1-800-708-7644
Focus: research funding, education, advocacy and public policy
Note: In June 2016, the Parkinson's Action Network (PAN) was integrated into MJFF.
www.parkinson.org phone: 1-800-4PD-INFO (473-4636)
Focus: education/care programs, research funding
Note: In August 2016, National Parkinson's Foundation (NPF) and Parkinson's Disease Foundation (PDF) merged to become the Parkinson's Foundation.
American Parkinson Disease Association (APDA)
www.apdaparkinson.org phone: 1-800-223-2732
Focus: education/care programs, research funding
Davis Phinney Foundation
Focus: education/care programs
The Parkinson Alliance
Focus: research funding
Focus: support, research, public policy
The Cure Parkinson's Trust
Focus: research funding
European Parkinson's Disease Association
Focus: education, care, awareness
World Parkinson Coalition
Focus: collaboration between researchers, clinicians, patients
National Institute of Neurological Disorders and Stroke (NINDS)
at the National Institutes of Health (NIH)
MEDICAL AND RESEARCH CENTERS
Morris K. Udall Parkinson's Disease Research Centers of Excellence
Parkinson's Foundation Centers of Excellence
U.S. Dept. of Veterans Affairs Parkinson's Disease Research, Education, and Clinical Centers (PADRECCS)
Parkinson's Study Group (PSG)
Non-profit group of physicians and other health care providers in the United States, Canada and Puerto Rico dedicated to clinical research of Parkinson disease. View map of PSG-credentialed clinical trial sites.
APDA National Young Onset Center
ATYPICAL PARKINSONISM (PSP, CBD, MSA, LBD)
CurePSP - Foundation for PSP | CBD and Related Brain Diseases
Lewy Body Dementia Association
REGIONAL SUPPORT ORGANIZATIONS
Stanford Parkinson's Community Outreach - APDA Information & Referral Center (serving Northern & Central California)
Parkinson Association of Northern California (PANC)
PD Active (serving Berkeley/Oakland region)
Parkinson Network of Mt. Diablo (Contra Costa/Alameda counties)
EASE PD (Santa Cruz County)
Parkinson's Association (serving San Diego)
NeuroCommunity Foundation (serving northern Los Angeles county, Ventura county, Central Coast & Central Valley)
Parkinson Association Santa Barbara
Parkinson's Resource Organization (serving Southern California)
PD Buzz - Resources for the Orange County Parkinson's Community
Parkinson's Association of Orange County
Parkinson's Wellness Fund (wellness grants for PD services)
parkinsonswellnessfund.org (based in Southern CA)
Northwest Parkinson's Foundation (WA, OR, AK, ID, MT)
Parkinson and Movement Disorder Alliance (Arizona)
Parkinson Association of the Rockies (Colorado)www.parkinsonrockies.org
AARP Caregiving Resource Center
California Caregiver Resource Centers
California's nonprofit Caregiver Resource Centers are located throughout the state and provide core services to families and caregivers ranging from counseling and care planning, to legal/financial consulting and respite, at low or no cost.
The centers are affiliated with the San Francisco-based
Family Caregiver Alliance (caregiver.org).
Caring.com is an online destination for those seeking information and support as they care for aging parents, spouses, and other loved ones. The site provides Senior Living and Senior Care directories and advice on geriatric medicine, law, finance, housing, and other key areas of healthcare and eldercare.
Caregiver.com is a provider of information, support and guidance for family and professional caregivers. It publishes "Today's Caregiver" magazine and maintains a web site, caregiver.com, with topic specific newsletters, online discussion lists, back issue articles of Today's Caregiver magazine, and chat rooms.
Caregiver Action Network (formerly National Family Caregivers Association) (www.caregiveraction.org) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.
National Alliance for Caregiving (www.caregiving.org) is a non-profit coalition focused on improving the lives of caregivers and their families through research, innovation and advocacy.
Find a support group in your area. Support groups offer an opportunity to share experiences, advice, and resource information with other patients and families in a friendly and confidential setting.
a resource directory for Parkinson's patients, families, and caregivers
Parkinson's Support Network
View our Events page for a list of upcoming PD webinars and events happening in California and beyond.
site redesign July 2020
View our Treatment page to find allied health professionals offering physical therapy, occupational therapy, speech therapy and more.
A list of excellent books on PD can be found on Amazon.com by searching on the keywords "Parkinson's disease" and selecting books that are highly rated and cover topics of particular interest to you (e.g., overview books for the newly diagnosed or books by patients for patients). Books with more recent publishing dates should have more up-to-date information on research and treatment options.
Forums include: "Ask the Doctor", "Ask the Surgical Team",
"Ask about Nutrition", "Ask the Pharmacist", and "Talk to a Speech Clinician".
Online support and information sharing to help manage treatment and inform research
Online support group for Parkinson's patients and families started in 2006.
Social network/online support group for Parkinson's patients and families launched in August 2015.
Promotes dialog between PD patients & researchers. Maintains the Parkinson's Research Interest Group on Facebook.
ClinicalTrials.govTo view Parkinson's disease clinical trials past and present, visit ClinicalTrials.gov, a service of the NIH that provides a database of federally and privately supported clinical trials conducted in the United States and around the world. There are about 2000 PD trials/studies to date in the ClinicalTrials.gov database, with almost 600 of these currently active.
To view active studies in the Parkinson's disease clinical trial pipeline, filtered by study type (interventional, observational), study phase, recruiting status, therapy and location, visit PDTrialTracker.info.
Fox Trial Finder
To view recruiting trials near you for which you may be a match, visit www.FoxTrialFinder.org, a clinical trial matching tool developed by The Michael J. Fox Foundation for Parkinson's Research.
View news on the Parkinson's News Today digital news site.
Subscribe to email news updates from Parkinson's News Today.
View news on The Michael J. Fox Foundation's (MJFF) blog.
Subscribe to receive email news updates from MJFF.
View news on Northwest Parkinson's Foundation (NWPF) site.
Subscribe to receive weekly e-newsletter from NWPF.