NATIONAL/INTERNATIONAL NON-PROFITS

The Michael J. Fox Foundation for Parkinson's Research (MJFF)
www.michaeljfox.org   phone: 1-800-708-7644

Focus: research funding, education, advocacy and public policy

Note: In June 2016, the Parkinson's Action Network (PAN) was integrated into MJFF.

 

Parkinson's Foundation

www.parkinson.org     phone: 1-800-4PD-INFO (473-4636)

Focus:  education/care programs, research funding

Note: In August 2016, National Parkinson's Foundation (NPF) and Parkinson's Disease Foundation (PDF) merged to become the Parkinson's Foundation.

     

American Parkinson Disease Association (APDA)
www.apdaparkinson.org    phone:  1-800-223-2732
Focus:  education/care programs, research funding


Davis Phinney Foundation

www.davisphinneyfoundation.org

Focus:  education/care programs


Brian Grant Foundation
briangrant.org
Focus: exercise, nutrition, support


The Parkinson Alliance

www.parkinsonalliance.org

Focus:  research funding


Parkinson's UK

www.parkinsons.org.uk

Focus:  support, research, public policy

 

The Cure Parkinson's Trust

www.cureparkinsons.org.uk

Focus:  research funding


European Parkinson's Disease Association

www.epda.eu.com

Focus:  education, care, awareness


World Parkinson Coalition

www.worldpdcoalition.org

Focus:  collaboration between researchers, clinicians, patients


MEDICAL AND RESEARCH CENTERS

National Institute of Neurological Disorders and Stroke (NINDS)

at the National Institutes of Health (NIH)

www.ninds.nih.gov/disorders/parkinsons_disease


Morris K. Udall Parkinson's Disease Research Centers of Excellence             

www.ninds.nih.gov/research/parkinsonsweb/udall_centers


Parkinson's Foundation Centers of Excellence

www.parkinson.org/expert-care-research/centers-of-excellence/listing


U.S. Dept. of Veterans Affairs Parkinson's Disease Research, Education, and Clinical Centers (PADRECCS)

www.parkinsons.va.gov/new_front_page.asp


Parkinson's Study Group (PSG)
www.parkinson-study-group.org

Non-profit scientific network of Parkinson centers in North America. map of PSG-credentialed clinical trial sites.

CLINICAL TRIALS
ClinicalTrials.gov - clinical trial registry and search tool supported by the U.S. National Institutes of Health


FoxTrialFinder.org - clinical trial search tool provided by The Michael J. Fox Foundation

​PDTrialTracker.info - overview of PD clinical trials registered on ClinicalTrials.gov


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resource Directory

There are many organizations focused on research, advocacy, care and support for the Parkinson's community.  These include non-profit foundations, medical and research centers, government agencies, and regional support groups. Each has its own special focus, but all share the common goals of improving the lives of those affected by Parkinson's disease and someday finding a cure.

[

site redesign July 2020

CalPD.info

Parkinson's Support Network

a resource directory for Parkinson's patients, families, and caregivers

NEWSLETTERS and BLOGS

Parkinson's News Today
www.parkinsonsnewstoday.com

PMD Alliance maintains a list of Parkinson's blogs at:
www.pmdalliance.org/resources-national-regional-local-resources-national/ 

COMPLEMENTARY THERAPY PROGRAMS  
PWR!Moves® PD-specific exercise program developed to retrain and maintain skilled movement.  The program focuses on moves that can be performed in a sitting, standing or floor position, 
www.pwr4life.org

Dance for PD®  Dance for PD classes allow people with Parkinson’s to creatively address symptom-specific concerns related to balance, cognition, motor skill, depression and physical confidence through dance.
danceforparkinsons.org

Rock Steady Boxing is designed to improve the quality of life for people battling Parkinson's disease through non-contact, boxing-inspired fitness training. 
www.rocksteadyboxing.org

LSVT Global has developed movement therapy (LSVT BIG®) and speech therapy (LSVT LOUD®) programs for people with Parkinson's disease. 
LSVTGlobal.com

Parkinson Voice Project is dedicated to helping people with Parkinson's regain and maintain their voices through the SPEAK OUT and LOUD CROWD voice therapy programs. 
www.parkinsonvoiceproject.org

PMD Alliance maintains a list of wellness programs by U.S. state at:  www.pmdalliance.org/exercise-groups/

SUPPORT GROUPS
PMD Alliance maintains a list of support groups by U.S. state at:
www.pmdalliance.org/support-groups/ 


CAREGIVER RESOURCES

AARP Caregiving Resource Center

www.aarp.org/home-family/caregiving


Family Caregiver Alliance 

caregiver.org provides information and resources for family caregivers.


Caring.com​ is an online destination for those seeking information and support as they care for aging parents, spouses, and other loved ones.


Caregiver.com is a provider of information, support and guidance for family and professional caregivers. 


Caregiver Action Network (www.caregiveraction.org) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.


National Alliance for Caregiving (www.caregiving.org) is a non-profit coalition focused on improving the lives of caregivers and their families through research, innovation and advocacy.


ATYPICAL PARKINSONISM (PSP, CBD, MSA, LBD)
CurePSP - Foundation for PSP | CBD and Related Brain Diseases
www.psp.org

Lewy Body Dementia Association 
www.lbda.org

Brain Support Network
brainsupportnetwork.org​