parkinson's organizations

There are many organizations focused on research, advocacy, care and support for the Parkinson's community.  These include non-profit foundations, medical and research centers, government agencies, regional support groups, and advocacy groups. Each has its own special focus, but all share the common goals of improving the lives of those affected by Parkinson's disease and someday finding a cure.


NATIONAL/INTERNATIONAL NON-PROFITS

The Michael J. Fox Foundation for Parkinson's Research (MJFF)
www.michaeljfox.org   phone: 1-800-708-7644

Focus: research funding, education, advocacy and public policy

Note: In June 2016, the Parkinson's Action Network (PAN) was integrated into MJFF.

 

Parkinson's Foundation

www.parkinson.org     phone: 1-800-4PD-INFO (473-4636)

Focus:  education/care programs, research funding

Note: In August 2016, National Parkinson's Foundation (NPF) and Parkinson's Disease Foundation (PDF) merged to become the Parkinson's Foundation.

     

American Parkinson Disease Association (APDA)
www.apdaparkinson.org    phone:  1-800-223-2732
Focus:  education/care programs, research funding


Davis Phinney Foundation

www.davisphinneyfoundation.org

Focus:  education/care programs


The Parkinson Alliance

www.parkinsonalliance.org

Focus:  research funding


Parkinson's UK

www.parkinsons.org.uk

Focus:  support, research, public policy

 

The Cure Parkinson's Trust

www.cureparkinsons.org.uk

Focus:  research funding


European Parkinson's Disease Association

www.epda.eu.com

Focus:  education, care, awareness


World Parkinson Coalition

www.worldpdcoalition.org

Focus:  collaboration between researchers, clinicians, patients


GOVERNMENT ENTITIES

National Institute of Neurological Disorders and Stroke (NINDS)

at the National Institutes of Health (NIH)

www.ninds.nih.gov/disorders/parkinsons_disease


MEDICAL AND RESEARCH CENTERS
Morris K. Udall Parkinson's Disease Research Centers of Excellence             

www.ninds.nih.gov/research/parkinsonsweb/udall_centers


Parkinson's Foundation Centers of Excellence

www.parkinson.org/expert-care-research/centers-of-excellence/listing


U.S. Dept. of Veterans Affairs Parkinson's Disease Research, Education, and Clinical Centers (PADRECCS)

www.parkinsons.va.gov/new_front_page.asp


Parkinson's Study Group (PSG)
www.parkinson-study-group.org

Non-profit group of physicians and other health care providers in the United States, Canada and Puerto Rico dedicated to clinical research of Parkinson disease.  View map of PSG-credentialed clinical trial sites.

YOUNG ONSET

APDA National Young Onset Center

www.youngparkinsons.org


ATYPICAL PARKINSONISM (PSP, CBD, MSA, LBD)
CurePSP - Foundation for PSP | CBD and Related Brain Diseases
www.psp.org


Lewy Body Dementia Association 

www.lbda.org

DEEP BRAIN STIMULATION (DBS)
DBS4PD.org, an affiliate of the Parkinson Alliance


REGIONAL SUPPORT ORGANIZATIONS

Stanford Parkinson's Community Outreach - APDA Information & Referral Center (serving Northern & Central California)

parkinsons.stanford.edu


Parkinson Association of Northern California (PANC)

www.parkinsonsacramento.org 


PD Active (serving Berkeley/Oakland region)

pdactive.org


Parkinson Network of Mt. Diablo (Contra Costa/Alameda counties)

pnmd.net


EASE PD (Santa Cruz County)

easepd.org


Parkinson's Association (serving San Diego) 

www.parkinsonsAssociation.org


NeuroCommunity Foundation (serving northern Los Angeles county, Ventura county, Central Coast & Central Valley)

neurocommunity.org


Parkinson Association Santa Barbara

www.mypasb.org


Parkinson's Resource Organization (serving Southern California)

www.parkinsonsresource.org


Parkinson's Association of Orange County

www.paocinc.org


Northwest Parkinson's Foundation (WA, OR, AK, ID, MT)

nwpf.org


Parkinson and Movement Disorder Alliance (Arizona)

www.PMDAlliance.org


Parkinson Association of the Rockies (Colorado)www.parkinsonrockies.org



PD resource Directory

events AND WEBINARS

View our Events page for a list of upcoming PD webinars and events happening in California and beyond.

Support groups in California

Find a support group in your area.  Support groups offer an opportunity to share experiences, advice, and resource information with other patients and families in a friendly and confidential setting.

newsletters and BLOGS

View news on the Parkinson's News Today digital news site.

Subscribe to email news updates from Parkinson's News Today.


View news on The Michael J. Fox Foundation's (MJFF) blog.

Subscribe to receive email news updates from MJFF.


View news on Northwest Parkinson's Foundation (NWPF) site.

Subscribe to receive weekly e-newsletter from NWPF.


[

online forums

Parkinson's Foundation forums

Forums include: "Ask the Doctor", "Ask the Surgical Team",

"Ask about Nutrition", "Ask the Pharmacist", and "Talk to a Speech Clinician".

PatientsLikeMe - Parkinson's Disease forum

Online support and information sharing to help manage treatment and inform research 

NeuroTalk Communities - Parkinson's Disease forum

Online support group for Parkinson's patients and families started in 2006.

MyParkinsonsTeam.com

Social network/online support group for Parkinson's patients and families launched in August 2015. 

Parkinson's Advocacy Research Group

Promotes dialog between PD patients & researchers. Maintains the Parkinson's Research Interest Group on Facebook.


Parkinson's tulip

CalPD.info

California Parkinson's Support Network

a resource directory for California Parkinson's patients, families, & caregivers

caregiver resources

AARP Caregiving Resource Center 

www.aarp.org/home-family/caregiving


California Caregiver Resource Centers

caregiver.org/californias-caregiver-resource-centers

California's nonprofit Caregiver Resource Centers are located throughout the state and provide core services to families and caregivers ranging from counseling and care planning, to legal/financial consulting and respite, at low or no cost.

The centers are affiliated with the San Francisco-based

Family Caregiver Alliance (caregiver.org).


Caregiver.com is a provider of information, support and guidance for family and professional caregivers.  It publishes "Today's Caregiver" magazine and maintains a web site, caregiver.com, with topic specific newsletters, online discussion lists, back issue articles of Today's Caregiver magazine, and chat rooms.


Caregiver Action Network (formerly National Family Caregivers Association) (www.caregiveraction.org) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.


National Alliance for Caregiving (www.caregiving.org) is a non-profit coalition focused on improving the lives of caregivers and their families through research, innovation and advocacy.

California poppy

medical and therapy providers in CAlifornia

View our Treatment page to find a movement disorder specialist or general neurologist in your area, as well as allied health professionals offering physical therapy, occupational therapy, speech therapy and more. 

clinical trials

ClinicalTrials.govTo view Parkinson's disease clinical trials past and present, visit ClinicalTrials.gov, a service of the NIH that provides a database of federally and privately supported clinical trials conducted in the United States and around the world.  There are about 2000 PD trials/studies to date in the ClinicalTrials.gov database, with almost 600 of these currently active.

View recruiting trials throughout California.

View recruiting trials in the San Francisco area.

View recruiting trials in the Los Angeles area.

View recruiting trials in the San Diego area.


PDTrialTracker.info

To view active studies in the Parkinson's disease clinical trial pipeline, filtered by study type (interventional, observational), study phase, recruiting status, therapy and location, visit PDTrialTracker.info.


Fox Trial Finder
To view recruiting trials near you for which you may be a match, visit www.FoxTrialFinder.org, a clinical trial matching tool developed by The Michael J. Fox Foundation for Parkinson's Research.

Parkinson's books

A list of excellent books on PD can be found on Amazon.com by searching on the keywords "Parkinson's disease" and selecting books that are highly rated and cover topics of particular interest to you (e.g., overview books for the newly diagnosed or books by patients for patients).  Books with more recent publishing dates should have more up-to-date information on research and treatment options.